

CANCER
GENETIC CANCER RISK
Endocrine
High Risk
Other
Elevated Risk
Renal
Elevated Risk

CANCER TYPE
PROCEDURE
CANCER RISK
RISK FOR GENERAL POPULATION *
Paraganglioma/Pheochromocytoma
To age 60
25% risk for tumors, only some of which will be malignant
<0.1%
Renal
To age 80
Elevated risk
1.4%
Gastrointestinal Stromal Tumors (GIST)
To age 80
Elevated risk
<0.1%

CANCER TYPE
PROCEDURE
AGE TO BEGIN
FREQUENCY
Paraganglioma/Pheochromocytoma
Clinical monitoring, including blood pressure measurement3, 4
6 to 8 years
Annually
Biochemical screening of serum and urine3, 4
6 to 8 years
Annually
Whole-body MRI with consideration of the head and neck3, 4
6 to 8 years
Every 2 years
Renal
Abdominal MRI (preferred) or CT, with and without IV contrast1
12 years
Every 4 to 6 years
Gastrointestinal Stromal Tumors (GIST)
Complete blood count and attention to symptoms such as gastric bleeding, obstruction, abdominal pain, nausea, etc.4
6 to 8 years
Annually